tuesday

Feeling pretty good today. The chest hurts quite a but. (Overdoin it during the day) But other than that....
Diggin the weight loss though. I need smaller clothes, seriously. Not a bad problem to have.

But the other good news, my father started to move his left leg. (He had a stroke three days before I got my heart.) ((What timing)). So, I'll accept that as a miracle and that is that. Alot of us are praying for him. It'll be a long road. But he's a fighter and always has a positive attitude. I expect a full recovery.
It's been quite a year already and I just want everything to calm down so D and I can coast a while, relax and catch up. Much needed vacation.
TTYL,
~R

Sunday June 6

Hey there,
I got my results back from the biopsy and I'm not rejecting at all as of now. I'm at 0R. some they took me off three meds and lowered the prednisone again. If it keeps going this way I'll be off most of my meds in a few months. Though I'll have to take anti-rejection meds for the rest of my life. Which doesn't bother me at all. Getting back to a normal life. I'll get the o.k. to drive andm play drums in 2 weeks. Looking forward to that.
Alot of you have been wanting to see the pics I have on the procedure. They're pretty graphic so I'm looking for a way to open the on the page without them just showing up on the page. We'll see. I'm working on it.
Well, that the good news for the day. Talk to you soon.
~R

thursdsay

Thursdays are long days at the hospital (AGH) all day testing with a biopsy chaser) 6am - 3-4pm.
By the time we get home D and I are so tired it;s straight to bed. I'll get a call tomorrow about the biopsy and rejection levels. The first 3 months are critical. I'm one month to the day after the transplant. So far so good. I'll let you all know the results as I get them. But so far today I was taken off three meds and it looks like they 'll lower the prednisone another 5 mgs. (That is good news) The pressures in each chamber and my lungs is exactly where the docs want them to be. If all goes well. I'll be able to drive in 2 weeks. And that little bit of independence is gold. D can get a break finally. And I can start making some house call to family and friends. I have alot of you to catch up with.
Until next time, thanks for reading,
~R

wed. June 2

hey all,
Going for another biopsy omorrow. and will let you know what we find out. I get a biopsy every week on the right side of my heart to test for rejection and what not. So far, I'm looking the way I should with very mild rejection. Some rejection is expected. Rejection ranges from 0-7r, I' (I'm at 1r mild inflammation of some cells) Again, expected. I'll learn more Friday on my immunity levels. As it stands right now, it's still pretty weak.
Please continue to pray for my father. Some of you know that he had a stroke 3 days before I got the call that a heart was ready to be transplanted to me. I haven't been able to see him in person at the rehab facility (Due to the germs) since I got out from the hospital nearly a month ago. He's making some progress though.
So as you can imagine, I'm getting pretty fed up with hospitals and clinics and such. But whatcha gonna do?
I'll keep you posted.
I told you at the beginning of this blog that I would chronicle the journey from start to finish. (The end being life after the transplant. Well we're here. I didn't think it would be after only 4 months but it is. I plan on telling you all about the night I got the call for the heart and what followed. So keep checking in.
thanks for following the blog. Talk to you soon.
~R
~R

Sunday May 30

Hi All,
Just a quick note to let you know that I'm still feeling great and have since I was released. My weekly biopsies are returning some good news and the meds are coming down in both dosage and frequency. Getting off the prednisone will be great.
D and I saw some good friends last evening and had a blast. I'll be doin more of that soon. Went to the flea market this morning to get out a lil while. It was a beautiful day to be out.
I plan on spending quite a bit of this summer outside. D and I are excited about geocaching. Never heard of it? Look it up. We're starting soon. Just trying out some equipment first. See if her phone may work in some situations. (Now, you gotta look it up)
I'll be talkin to you all soon.
Keep checking the blog for the transplant story.
See ya around,
~R

fri. May 28th

Hi All,
As promised I'll be blogging again. (See, I am now...Ta Da)
Forgot to mention yesterday that there be a short article about my transplant in the Latrobe Bulletin soon. Maybe Saturday. It's basically everything you already know so, no biggie.
I've been bumping into some of you here and there and it's been great. I am getting stronger and will be visiting you very soon. (been needing to get out for a while) I have plans to get together will my brothers (Ed n Johnny) along with the rest of the maniacs this holiday weekend and I'm pretty pumped for that. Hope all of you have a safe and great holiday. Just don't forget the reason we have the long weekend. Honor those who fought and died and even up with ridicule and blame by some ingrates, our American soldiers. God Bless Them.
Talk to you soon,
~R

Thursday 27th

Hi All,
It has been awhile since I blogged... Richard is doing very well. Looking at him, it is hard to believe that he just had a heart transplant! He is starting to feel better and has a lot of energy at times. Soon he will be running circles around me and I'll have to change my behavior to keep up.

Once a week he goes back to AGH for a day of testing to check for rejection and to see what his levels are at for various things, for example blood sugar. Today's testing all went well. The doctors continue to look at his progress with a smile and amazement. They are very happy with how he is doing. Good progress means, that the medications he is taking gets reduced and that is always a good thing.
Richard is going to blogg himself, he promises, in the next few days. We are trying to settle in to our place and get some-kind of schedule going.

We hope that you take the time this holiday weekend to be with your families and enjoy this special time together.
Lots of love Dee and Rich

Thursday, May 13th / HOME!

10 days after Richard's heart transplant and we are home! God has been so good! He is looking great, a lot of color. He is walking around, by himself! He will need to continue to get a lot of rest for now and keep his feet up.

For the next few weeks, he will not be going out into public places and will need to keep his visits with you to a minimum. His rejection rate is very high for a few months and is very susceptible to germs and getting sick. They compare him to a new born baby as far has his immunity is concerned. We do plan on having a big get together in a few weeks to see all of you!

All our / your prayers continue to be answered. First we got the heart really fast ( 10 days on the waiting list), unheard of! We prayed for a young and good heart. They tell us the heart is in the 20's and in very good condition! We have pictures to show those of you who are not squeamish! We prayed that he would not have issues with Diabetes, which can be an issue with the meds he is on. The doctor told us yesterday that so far, this is not an issue and they are surprised that he is going home without meds for Diabetes! We prayed that he did not have to go home with any drains and this also was the case.

We thank all of you for your continued prayers and faithfulness! Her are the things we are praying for now: Rejection - we do not want this to be any issue of any sort
High Blood Pressure
Post-transplant Diabetes
Infection
CMV Infection
Graft Coronary Disease
Cancer of the skin or immune system

We are thanking God ahead of time to keep him protected from all of the above issues and to heal quickly without complications. As stated before, we have thousands of people praying and Good had to show up in a BIG WAY and answer all of our prayers! He can do the same for you!
I am hoping that Richard will have the strength to pick back up on the blog starting tomorrow...
Good night and God bless,

Thursday, May 13th morning

Hello all,
just a quick update... We are still at AGH. We are hoping that Rich will get released today. This is pending on the drainage. He may come home with one and go back in a few days to have it taken out.

We'll keep you posted... Have a great day

Wed May 12th 7:30 AM

Good morning all,
Amanda was just in and took out two of four drain tubes. The heart caf from yesterday is good overall, just still a lot of fluid on board. Looks like tomorrow will be the go home day. Today will be a day of getting rid of fluids...... He is doing well and very anxious to get home.. However, he does not want to come back for a chest tube for additional liquids like last time (too painful).

Hang in there.. Keep you posted

Monday 10th, 6:50 PM

In a few hours, it will be one week since Dr. Baiely came out of the operating room to give us the great news that Richard was doing well after surgery! Things have happened so fast, and have gone so well, that we have to pinch ourselves sometimes to make sure it is all real!

Richard continues to get exercise by walking around the halls, followed by putting his feet up. Looks like he will be coming home later this week, maybe by Thursday. We want to make sure all is well, before we venture out of here.

He has had many visitors from the Cardiac team, Transplant team and also our friend Rosie... He is looking forward to getting home and seeing all of you very soon. He also received pictures from his operation and will share them with those of you who want to see them. I wasn't sure myself if I wanted to see them.. I have and they sure are educational.
Spend time with those you love.... Good night

Sunday May 9th

All,

Happy Mother's Day to those it applies to! It was great to see both of our mothers today and get to spend some time with them!

Just a quick update... Richard is doing so well it is just hard to believe! He is walking on his own and spent most of the day out of bed. Walking and talking to a bunch who visited today. He has great color and looks the best that he has for a long time. We hope to bring him home on Tuesday if all the medical data looks good at that point. It should be a 6 to 9 weeks of recovery until his incision is healed. He will be making weekly trips to the clinic for the first few months, then every other week and so on for the first year.

Get some good sleep tonight..

Prayer needed

Hello all,
We just found out that an extended family member is also here in AGH. Her name is Shantasia Kirtchell, she is 16 years old. Shantasia was in an auto accident with her boyfriend very recently. She is in critical condition.

So we are asking all of you, our prayer warriors, to pray for her too. We have seen the miracles that God had given Richard and we are expecting miracle of the like for this sweet 16 year old.

We thank you and ask the Lord to Bless you,

Sat, May 8th 10 AM

Richard got moved up stairs to a room on the 5th floor (569), late yesterday. I was able to spend the night with him ( of course not in the same bed!) . He took his first walk yesterday down the hall with assistance from Juli and a walker. Today we will take many walks around the floor to buildup his legs. There is a bunch of stuff that we have to learn before going home. We have set a goal with Juli to have everything completed by Tuesday. If all medically is in line by then, we will be able to go home!!! It is just so hard to believe that Richard has come this far so fast! The idea is to get out as soon as he can and recover at home.
God continues to give us blessing each day.....
Do something fun with your family today.
PS
comment from Richard "I can't wait to play the drums"

About 72 hours since the New Heart!

It is just amazing to realize that Richard got his new heart about three days ago! I went in to see him at the 2 PM visit and got him to open his eyes and look at me. I said Richard, you got a new heart, it is doing great and your doing great. He looked at me with a look of confusion and question and said "Did I get a new heart?". I assured him that he did, he gave me a great big smile and then we cried together for joy.
Of course he is still going in and out of sleep. We were able to stay with him until 6:45, so we were able to talk to him in between naps. I fed him his food (jello and broth) and around 6:30 PM he asked me again if he really did get a new heart, this time my mother helped to assure him. God has truly blessed us and everything has happen much faster than we could ever anticipated. Sometimes it is just hard to comprehend it all.
Once again thanks for your continued prayers and thoughts.
God bless and kiss you loved ones,

Thursday 6th, 11:30 AM

Just left Richard and he is doing GREAT! They tell me his numbers are perfect and just where they would want them to be. They did take his breathing tube out this morning. He looks good, has more color than he has since February 5th. They are hoping to have him awake by our 2 PM visit and by the end of the day sitting up in a chair!

This is moving so fast that my head is spinning. We are so thankful to God, all of you have been supporting (in many ways) and for all of your prayers. I can't wait to talk to him and have him realize that he has a NEW heart and it is working GREAT.

PS
Happy Birthday to cousin Bev! Heard you brought more food. Can't wait to get home to eat some because it is always GOOD. We sure are blessed to have a caterer in the family.
Let you know what Richard has to say this afternoon.

Wednesday 5th 11 AM

Good news... Richard was closed up this morning! He is progressing well and things are happening as planned. They hope to take out his breathing tube later today. Once that happens, they will bring him up to a conscience level. He then will be able to talk, but they will continue to give him pain medicines that keep him somewhat sedated. Based on our experience from the last operation in February, he will not remember much from this time period.
Thanks for all of your continued prayers,

24 hours after going into surgery

Just a quick up date.... Rich did well through the night and is still under heavy sedation. This allows his new heart and body time to get use to each other without having other functions taking energy too. His chest is still open at this time. We are waiting for the blood seepage to slow down and for some of his blood elevations to level out. Once this happens they can close him up. This is all normal stuff when you go through a transplant. Dr. Bailey is hoping to close him up later today, but it might be tomorrow..... All is good and we continue to move in the right direction. Not much to tell you at this time since it is healing time.
I want to say that the doctors, nurses and staff her at AGH continue to be very helpful, understanding and top notch! We are thankful for all of them that have gotten Richard this far..

Tuesday 4th 2:30AM

First we have to thank all of you have been praying for us... Our prayers have been answered much quicker than anticipated and in many ways! Richard was out of surgery around 10:45 PM on May 3rd. Dr. Bailey came to see us and told us that the new heart looks good, strong and it is young. The new heart is currently beating and keeping him alive! No more Heartmate II - although we were very happy to have this piece of equipment to keep him alive until this point!
We just got done visiting him for a few minutes to see that he is alive and breathing. He will be heavily sedated for a day or two. Hopefully tomorrow afternoon, they will be able to close up his chest. We are waiting for the bleeding to settle down and get under control - this is part of the normal process...
So here are the things that we are praying for now: bleeding to stop and able to close him up tomorrow, speedy healing, and no long term issues with diabetes. Short term is expected due to the high dosage of strong meds. Keep those prayers coming...
Good night.. hoping to get a few hours, so no reporting tomorrow until the afternoon.
Peace be with you..

New Heart

Monday, May 3rd at 1:00 AM we received a call that a heart had become available for Richard. He had been sick for the last few days and feeling weak. He looked at me and said I'm not ready for a heart, hoping that he would be much stronger before the operation. On the other hand we were so shocked and excited to have been called after being on the transplant list for less than two weeks! Nothing short of a Miracle and an answer to many prayers!



Thanks to Tom driving us, we arrived at the hospital around 2:30 AM and started the process to verify that Rich was ready for this heart. After many hours of waiting we were told that he would go into surgery at 1:00 PM and later this got pushed out to 3 PM.



Many of you have been asking how Richard got the heart, since he was still listed as a 1B. This meant that all of the 1As did not have a good match to this heart that became available. So they moved to the 1B list and Richard was a good match. They look for many things: blood type, size of the heart, tissue matching.....



We where told more than once that it is possible to get here, get prepared, go into surgery and then the doctor find something he doesn't like and send you home without the heart and go back on the list. This happens very seldom, but you have to keep this in mind just in case... So with many hours to wait and lots to think about Richard made the nurses & doctors laugh (we wouldn't expect anything less!), found peace with the operation and the outcome, got to sleep a few minutes in between all that was going on during the preparation. When he left he was very positive and at peace.

Will update you as soon as we hear he is out...



ok.. visiting and sending him stuff... here is a brief outline of their rules:

* No flowers, unless they are fake

* Balloons and cards are fine

* Send cards to Allegheny General Hospital

320 East North Ave

Pittsburgh, PA 15212



They will be strict on visiting hours while he is in the SICU( Surgical Intensive Care Unit), which are:

10AM-10:30AM

2:00PM-2:30PM

8:00PM-8:30PM

2 immediate family members per visit

Sunday

Very sore today. Over did it yesterday, but no problems. I just got a good workout. This past week has been a good one. More energy and strength. Spirits are high. Ready for summer. Thanks MomR for helping organize. Still alot to do but the big part is done. THANK YOU ALL!
Feeling ready to start playing/writing music with Johnny and Eddie. Maybe next week. (Drums/percussion=Great cardiovas. workout.)
There's been a growing trend in my circle of family n friends that involves a little more awareness to their health...especially the heart. Quite a few are getting stress tested and finding that are things they should be doing to stay healthier. Some are discovering they weren't as "in the clear" as they thought. Let me take this time to thanks everyone for sharing your questions and concerns with me. I don't want to preach but I know a few others I'd like to see just merely examined as prevention. Just a thought.
I'm gonna crash early today cuz I have another big day tomorrow.
Talk to you soon,
~R

TGIF

Exhausting day...Getting ready for the "big move". (No, not the transplant yet) but relocation.
Thank you John and LaDonna for all the help with the packing. And a very special thank you to Ian and K.K. for all the yard work and lifting they've been doing. (seriously, they're like, the best kids)
Aunt Dorcas and I really love you 2.
Gotta get some rest. Really worked today. And will tomorrow I'm sure.
Talk at you all later.
~R

Wednesday, April 21

Hello All,
Still sleeping good and feeling so much stronger everyday since the meds are adjusted.
Things are rolling along as planned.
I got an important call today from the transplant coordinator. I am officially on the list!
This is great news. I'm listed as a 1b. You can learn more about the transplant list here:

http://www.chfpatients.com/tx/txcall.htm

Thank You everyone for the constant prayers. I know a group of prayer warriors who will be pleased to hear the news.
I will keep you posted with any news or events as usual.
Looks like things are getting interesting.
Talk to you soon,
~R

Tuesday, April 20

Hi gang,
I'm feeling much better today. Stronger. I see the cardio rehab is working. I feel like going for a walk.
Also, I've been sleeping a lot better than I have in years. Anyone who knows me, knows that's been a problem for years. I don't know why I'm sleeping through the night I just am. Thanks everyone for their prayers.
Dorcas and I have been keeping pretty busy with the apartment and all. Again, Thanks to everyone helping us with everything from carpeting(Ed, Marjie n Jim) to electric (John and Ladonna) to plumbing( Lem N Dawn) to painting (Mike n Dee) to generally anything.(Dad, Gregg, Tom, the man, Sis, Bev) and so many more. Wow, I just realized how hard it is to thank everyone on a major project like a movie or album. There's so many! I'll have a hard time remembering them all when I give my OSCAR SPEECH. (wait, ...wha?)
As for now, We're looking for anyone willing to help move some furniture this weekend. You know how to get hold of us and we'll take good care of your bellies.
We'd appreciate it.
We plan on having a soiree to celebrate and catch up with everyone. Maybe a grilling thang.
We'll let you know. Just a day in the sun to appreciate all the work so many have done for us.

Thanks everyone,
~Richard and Dorcas

Sunday April 18

It's been a week since my last blog. There was really nothing new to report. Except My Right Cath. went well and the tests I took all look good. Just a few more formalities and I'll be on the list as a 1B. I should get a "Go Live"* date this month or beginning of May. (*official list date)
They want to look at my thyroid, then who knows what else, but I was reassured I was very close to the end of the evaluation..
I met with more of the transplant staff when I was there Last week. I have to be honest. There are times when we're discussing the actual transplant that can't believe I'm the recipient of the organ and about to have it "swapped" out for my "original part." (so to speak) That feeling doesn't usually last long, however, there have been nights (LONG ONES) when it's all I think about. I need some distractions so I'll ask you all to drop me lines or ask me questions about the procedure to keep the dome busy.
Having more good days than bad. The exercise helps.
AND I also want to thank Ed, Margie n Jim for installing the carpet at my place yesterday. (Sorry I didn't come to see you but I was crashed out from the previous day) D and I really appreciate it.
Well, that's all I can think of at the moment but I'll make effort to blog daily. If i start to get bored I'll improvise.
~R

Sunday, April 11

hey all,
It's been a few days. I must have needed them because I have been feeling a lot better. I got my appetite back. (More or less) and little to no nausea. I have been extremely weak and short of breath but it feels like I'm turning a corner in my recovery. The rehab is going well. My spirits are up. I'm ready for summer.
I go back into AGH Wed. to get a right catch and hopefully some test results and place ment on the transplant list.
This is when and where I need your prayers people. I have to get strong to get on this list. The sooner I'm on the sooner I can return to my normal life. (HA! My life never was normal, but I know you all know what I mean)
I'll get A LOT of my independence back. And be able to do all the simple things I've not been able to recently.
But as always, I have to stay focused on the here and now, and that's strength and recovery.
I appreciate all every one's doing during this time.
THANKS FOR THE GRUB YESTERDAY, BEV!!!!! It clinched my appetite so I had everything.
I'll keep posting as I get news. Wed. should be a big day.
Talk to you soon,
~R

Day of tests

Hey all,
It's Wed night and I got home from the 'burgh a little while ago. I saw many doctors and took a few tests. (blood tests, CT Scans, Pulmonary tests, etc.) All needed to see where I stand on placement on the "List". I spent a lot of my discussions with the doctors focusing on my extreme nausea and lack of appetite. Obviously my weight loss and lack of energy cannot be helping me let alone getting me strong enough for a transplant. So a main focus getting me to eat.
It's so touch and go. I'll have a great day and a half...then four or five days of severe nausea and sickness.
Why try to pad the situation, eh? You wanna know what's really going on. and I don't see a need to sugar coat or omit anything.
I did start to feel better on the way home from the hospital today, probably because I wasn't getting admitted for anything. And I want to be home when I'm ill.

Hello to Rosie, My Pic lady, and thanks for the great advice. You made today a better one after I saw ya. You put a smile on my face when I see ya.
I have to go back in to AGH (where I was today) to get an R Cath (a catheter to check out the right side of my heart, and who knows what else they'll have planned that day. But as always, I'll let you know when I know.
Thanks all,
Take Care,
~R

Tuesday, April 6th

Hey All,
Sorry I haven't blogged for a few days, but I've been down again. more nausea. What a rollercoaster! It seems when I have one good day, the next 4-5 are rough ones. Well, I'm breaking that pattern some how!!!!! I'm going to Pittsburgh tomorrow to meet with the Transplant Team. While there I plan to get some answers about the nausea and extreme sickness I've been having. Also, I started Cardio-Rehab yesterday and despite how I felt it went well. I felt pretty good afterward. I'll go 3 times a week.
Thank you everyone who's been praying for me. Also, Thank you Bev for all the food!
I need to catch up with everybody so give me a call on my cell. I usually have it on if I'm able to take calls. I promise to try and get back if you leave a message. I just need to hear from the outside world.....dig?
If I can I'll blog about tomorrow's visit. (I don't plan on being admitted but I'll be ready in case.)
You'll hear from me soon.
Take Care Evryone and enjoy the day,
~R

Friday

I had some energy to work on the building project this morning! I took it easy but it was great to get moving and accomplish something. I spent the rest of the day hanging out w/ my Brother Gregg. We had a blast. He and I connect on a musical level like Eddie and I. (A never exhausted topic.) We take our music very seriously. Well, deeply. Serious isn't a word I wouldn't always use when Gregg, Eddie and I get together. We gad a lot of laughs. (And that really IS great medicine.) I'm glad I'm closer in proximity to him and my family. At this time, I need it to heal.
Thanks again to all the help, Prayers and support I've been getting from a lot of you. It may take a while but I will get to each one of you. (OH NO!) oh yes.
Going to head to bed. Big day tomorrow.
Take Care,
~R

Thursday

Hey all
Got up early and feeling great so far. High energy level. I'm going to head outside and get into something. Try and get out to enjoy the day as well. Play with your dog or walk your kids. (reverse that)
Will post later,
~R

4-0

Thanks everyone for the well wishes on my 40th B-day yesterday.
I have to admit, I have a completely different view on the number 40. Instead of dread, it was a relief to myself mad my loved ones that I made it. (HA , barely) It's going to be a trying year for myself and those close to me. Which means when I feel better and up to it. I'll be travelling some this summer.
I'm feeling pretty good today. Just about to have some breakfast.
Talk to you later.
~r

Uneventful Sunday

Fighting off some nausea. I don't know which med causes it for sure these days. but it's not as bad as it used to be. I am eating more, but losing weight. (not at an alarming rate) a few lbs. per week if that. (been meaning to shed those Christmas / New Year's spare tires anyway.)
I've been working on legs which a little weight on them. It does feel like they are getting stronger.
I can walk a lot further than I could before. I accept it's a long process But it's great to notice improvement.
Monday I'll start Cardio-rehab. That will boost my strength I'm sure.
Another quick thank you to those that helped me out this weekend. Mike and Dee, great work on the walls!
Love you guys,
~R

Saturday night

The building is really coming together I need to Thank Tom and John & LaDonna (Harteis) my Brother Gregg and Sista P for the work they have done. There's many more who helped, but I just wanted to mention the tireless ones. Who, instead of going home, stay and chug along till they drop. Thank You guys,
I Pray you know how much it means to D & I.
~R

Saturday

D & I went t6o Pittsburgh the the LVAD/AGH discussion dinner. It went pretty well. I felt very comfortable explaining my thoughts and ideas on the device. a lot of Q n A followed which I enjoyed even more. All in all it was a great evening until we got back to the hotel. For some reason I couldn't lay down with out struggling for air. Must have been something in my lungs so I got absolutely no sleep. I really wasn't that concerned about it though. I figured I fluctuate severely during these first months of recovery. I feel ok today just tired and somewhat fatigued. (Which is a norm) but I walked and did sonme weight training today. I could really use a string of these kind of days. I'm sure that's a round the corner.
Later,
~R

Thursday

Hey All, Feeling really good today. Energy and Spirits are up.
D & I are getting ready to head into Pitts for the day to speak and a dinner discussion focusing on the two major ways the HeatmateII can be used. (I'll speak on the aspects of being a bridge to transplant Patient)
also, we'll most likely be painting this weekend So we'll need cleaners and painters fri and sat.
If you can come either day. We'd so appreciate it. We'll need some to was down walls and others to paint. (most everybody has some kind of painting supplies. So if you bring them, that would help out a great deal. We'll feed you great food that Bev will be cookin up most likely.
The more people we have helping the quicker and easier it will go. Thank you to all that have offered to help us. We need take you up on it.
But like I said It's still a little up in the air about this weekend.
I'll let you know definitely very soon.
~Richard

Monday

I feel pretty good today. I had some breakfast and got a god report from the home care nurse. I also made arrangements to start cardiac rehab sometime next week. It's overcast today but I'm going outside anyway.
Later,
~R

Sunday

I feel much better today. I got some sleep and that makes a huge difference. I'm not nearly as nauseous today. I feel that fading fast. I sat outside by myself for a couple hours this morning and read the Sunday paper. The fresh air, solitude and sun helped me tremendously. I have somewhat of an appetite as well. My cousin Bev dropped off some more food for the laborers of the building and the food's just excellent. I can't pass that up.
A few of you asked about her catering services so here's a number you can reach her.
Bev's Catering 724 537 3322 She has a very diverse menu. Thank You so much Bev for helping me out these past weeks. We all appreciate it!
OK that clinches it. Time to eat something.
Later All,
~R

sat.

Did not sleep. up the entire night with nausea and absolutely no appetite again. worse than before. nausea medicine was no relief at all. called the doc today and he had me quit the latest antibiotic. I just can't take them now. I'll have to wait a few days for these to leave my body before I'm feeling like myself again. and praying the appetite comes back soon. going to take some sleep meds and try to sleep through this.
i will post soon.
rich

fri evening

Had a pretty good day. But really didn't eat. Then the nausea came back. I'll try some meds and get some sleep.

Thursday, Mar. 18

I slept pretty good last night. No nausea when I woke up and had an appetite as well. I feel very good today. A lot of energy so I plan to hit the exercise equipment for a bit today and go walk out in the sun later.
I had a slew of tests yesterday including a six minute walk while monitored, chest X-rays, blood work, you get the idea. All is looking well. I was reduced in dose and meds as well. (So I have fewer pills to take everyday) YES!
The cardiac team really wants to move me into the transplant phase a.s.a.p. (Put on the list) They'll need to see some strength and endurance improvement in the next few weeks. Thanks Lemmos and Raschelle for the equipment! You are the best.
So far, today is one of the best since I've been home and it's only 11:25am. Getting a lot done. Phone calls. Emails. Appointments. (hundreds of appointments) All the stuff I need to catch up on.
Feels good to get it out of the way.
Later,
~R

doctor's appt. (Bi Monthly check up)

Hey, we're back and I am so tired. Good reports all around. A lot of walking today. But I feel pretty good. My Docs switched some meds. and don't have to take as many now. And I got something for nausea. I'll tell you more tomorrow. I'm beat.
Night all
~R

posting comments made easy

What I hear from a lot of you is that you can read the blog but not leave comments. it can be tricky but here's some easy steps to post a comment regardless if you have google accounts or whatever. We'll call it the anonymous method.


When you go to the blog and read that days, (or any days update) 1.) click on the red comments link at the bottom of the paragraph.
Then at the end of all the comments, there will be a place for you to comment. 2.) Type in what you want but, at the end of your comment put your name (you'll understand why in a second.)
3. )Go to the down arrow where it says "Select file"
4. )Click on the last choice, "Anonymous" and then 5.) click "Post Comment"
after that...6.) Type in the word that's shown in the "word verification" box. 7.) "Post Comment" ....and that's it!!! It will take a second or two but then your comment will be posted.

You see, in the comments sections that we see, there will be a comment from "anonymous" but if you put your name at the end of your comment...We'll know it was yours.

Hope that helps.
Just got back from the docs and some minor running around. Good report from the doctor. My edema has gotten much better, which indicates my heart is working better. (In so many words)
Haven't gotten nauseated yet today and don't expect to. I do need to eat though. lack of energy is evident.
So you people who just learned to post a comment....try it. Just remember to include your name
later,
~R

Tuesday, Mar 16

Hey all,
It's 10:40am and already it's a very different kinda day. I got more sleep (uninterrupted) since I can't remember when. When I woke up I felt the constant nausea I had for over a week had left me. Now, granted, my appetite is not a huge one, but I'm having a light breakfast as I blog. I took my meds a few minutes ago and they're staying down in my stomach. (my apologies to anyone else eating .) My Mom flew in early this morning looking tired but very content. She had a wonderful trip to Georgia to see her new Great Grand-son. (She's got quite a few now.)She said the flight down was a breeze and also stated that she "overcame her fear of flying"! I was not expecting that. (I'm smiling)
I got a call from one of the docs at AGH and was invited to be a guest speaker at a symposium next week. Basically tell the docs there and from other hospitals what my experiences are like being a "bridge" patient with the LVAD. (The heart pump). "Bridge" meaning I'm relying on the Heartmate II LVAD only until I receive a donor heart. (bridge to transplant) I welcome the invitation and almost already know what I want to say. I'll jot down a few key points and just be honest from there.They want the positives AND the negatives of my experience so far.
I think I'll start out with a joke. I mean c'mon...I HAVE to. Maybe something about being stuck in an elevator with a group of psychologists and them all reverting back to their childhood at the same time. Luckily I had 22 lollipops I carry on me because it's happened before. (yes, I DID bring enough for everybody!) Dunno, we'll see. (The comments for this entry should be heaping with bad suggestions for an opening joke, I'm sure. I expect one from Angela at least.)
It's good to feel like my old self again. My spirits are high, my energy level is up and most of all I don't feel like I have the flu. Thank to all keeping me in their prayers! I think I'm going to sit on the front porch and soak a little sun and jot down some ideas.
Later on,
~R

last couple days

Some rough couple days this weekend. I thought I was on the upswing from the stopping the antibiotic, but it took much longer than I thought to get out of my system. I'm still a little queasy with barely an appetite. But this is the best I've felt in a long time. So, I'll take it. My home care nurse stopped by to get my blood sample and check the vitals...all of which look good. I was a little concerned about my blood oxygen since I'd been having difficulty trying to breathe when I laid down. But the level looks very good today. I have an appointment w/ Dr. Bursch (Latrobe) tomorrow and I head back to the clinic on Wednesday. I'm praying I walk out the SAME DAY. I really don't want to be admitted for ANY reason. So keep praying.
I need to get some real food in me as well. It's just so hard to eat still. I'm not eating nearly enough. But I need the energy. Thanks everybody that's been concerned and calling. I really couldn't blog these past few days. I'll have someone report in when I can't. Sorry to leave anybody hanging.
I'm expecting a good week with good reports all around. My spirits are rising the better I feel.
As always I'll let you all know what's going on when I find out.
Take Care,
~R

Yesterday

I had a pretty rough day yesterday. The nausea was too much. I tried to stay asleep as much as I could. So I didn't blog. I did feel alot better when my Mother-in-law stopped by to pay me a short visit. (Yes, my Mother-in -law) We actually have a great relationship. We have deep discussions and have more in common than one would think. (Thanks Mom R)There was a slight breeze coming through the window and I felt better for a while. (It smelled like spring outside) and a lot of the snow has melted. But as the day went on I regressed back into a flu like nausea that I could barely move. I talked to my docs and nurses and we isolated an antibiotic I was put on recently. (Avelox) I stopped taking it yesterday and feel much better today. I had a burger n fries in the middle of the night. And some fruit for breakfast this morning. (that's a lot of food compared to the last 4 days) I still have a ways to go before I feel my old "Post Open Heart Surgery Self" but any relief is still relief. My for today is to hit the treadmill easy sometime today, read the newspaper on the porch and play with the kitties. (Rough agenda I know) Beats being stuck in bed!

Wednesday

The first warm and sunny day in a long time!!! I sat on the front porch and absorbed all I could. Today was a good day. Thanks Lisa n Tom for the bear. Miss you guys!
My Mom's flying out tomorrow to see her Great Grandson for the first time. (Georgia) That should be interesting. You'd understand if ya knew my Mom. (Mom, I love ya. You'll be fine.) She's maybe not the "best" in flight. But once she sees the baby, the plane ride will be nothing. I plan on doing a lot of travelling when I get more strength. D and I have some great friends in other states I'd never been yet. (Like Vermont, I'll warn you ahead of time, Lisa and Georgia, I won't warn you, Barb.) I guess it's nothing new in my situation, to feel the urge to start seeing that which you'd not seen before.
Anybody got any other suggestions? Where are the must see places you've been too? (I expect some comments here people.) share. It's neat to share. Won't you be my neighbor? (and the meds kicked in)
Goodnight all

tuesday

Didn't sleep well and started to feel sick around 3 am. So I was up for a while. Still no real appetite. and those of you that know me, know the I'm eating something every couple hours. Saw my doc this afternoon and we discussed the nausea and what we can try to do about it. I'm praying this works. I need more energy from food that's obvious. Even the food I'm not allowed to eat doesn't appeal to me. C'mon, Hot Wings? You gotta be kidding me. Hotel Loyal Pizza? No. That's a little scary. I know a lot of you are praying for me. Include an appetite. I realize I have a lot of adjusting to do yet. and I'm keeping my spirits up. But I gotta eat, people. Dig?
I did eventually start to feel better, and I'm feeling ok right now. I even walked on the treadmill today. (twice and not very far.) I can breathe deep and clear and that's a relief after this week's little "sidestep". I can also sleep (for a little while) on my right side. I can't tell you how sweet that is. The more my chest and ribs heal the more I'll be sleeping the way I'm used to. (Oh Yeah)
There are things I realize I've taken for granted everywhere. I look at this in a positive way. I really do. I'm learning to re-appreciate things in my life. Something, I've needed to do for a while I believe.
Someday I may list them here. From the very obvious to the nearly unnoticeable.
I'll post more later. Time to eat.

Home again

Hi all,
This is Rich. I'm home again! My hospital stay was unexpected to say the least and I finally got home Saturday evening. Then I needed a day to recoup from the chest tube and other things. My left lung was filled with fluid and it took days to drain. I didn't realize how much fluid a lung could hold. Well, I never thought about it before, so...............
I'm still getting my blood checked to adjust certain drugs. It'll have to balance out sometime.
I don't have much of an appetite lately and I think it's because of all the meds. They really play havoc on my stomach. But all I can say now is that it's nice to breathe again. The docs tell me that fluid like this is expected after major surgery but rarely happens more than the once. (Thank God)
I'm still pretty tired from the week and haven't exercised yet, but I can't wait to start. I know I'll feel a lot better when I do.
You'll all know. Thanks yinz guys.
~Richard
P.S. Brynn worked on my back again today and really loosened it up. THANK B!

Sat 3 PM

Heading home soon!

Sat 6th 10:!5 AM

Good morning,
Just sending you a quick note to let you know that we are still at the hospital..... Hurry up and wait is the name of the game.
Will keep you posted,

Friday 3:30 PM

Hi,
It's still me (Dorcas) giving you an updated report. We got good news and some not so good news..... We will not be coming home today, but shooting for tomorrow morning. The good news is, they will be taking out the tube soon and this should lessen Richard's pain. He also has been given the OK to take a shower, which makes him extremely HAPPY.... They will be taking a new x ray at 5 AM, so we are hoping that we will be out of here early tomorrow...
Keep praying and thanks for your prayers and love

Hi,
Everyone is probably wondering what is up.... We are still here at the hospital... Rich just went down for a chest x ray. If this comes out looking good, they will take out the drain. So, we'll let you know how things progress.
Thanks to Duke for giving me a parking pass today!

Thursday afternoon

Rich's pain is being managed and looks like he is coming home tomorrow! MORE GOOD NEWS... Dr. Benza came in to see Rich, if Rich can get to a certain strength by March 10th.. Dr. Benza is considering putting him on the transplant list. So once we get home he will need to do a lot of walking, and leg exercises...
Our prayers are getting answered so keep them coming!~

update.... Rich is back in his room. They drained A LOT out of him and continues to drain. He is in much more pain from this, than from both of his other operations.... Pray he will sleep through some of this painful time until it lets up some.
Good news.. what they took from him was clear fluids and not blood. The doctor said this is a good sign.
Thanks

Good morning all,
Just a quick note from Dorcas to keep you up to speed... Rich and I went to AGH for two follow-up appointments yesterday. We got a lot of good news! The Defib. incision looked good and was working well. The cord from the Heartmate II is looking good. So good, that he got the approval and equipment to take a shower! This was great news!!

However, he has a little fluid in one of his lungs (a very mild concern). They have kept him overnight and is going in this morning to have this drained. The doctor said that he wants him home by the weekend if not sooner (depending on how long drainage takes). We know that you love him, but no trips are necessary to come to see him at the hospital.

Very happy about all the good reports and life is good... Will post soon
Thanks for all of your support

Follow up tomorrow

I'll be at AGH (The hospital that installed my heart pump 2 weeks back) all day tomorrow. First, I'll meet with the electro-cardiologist to get the stitches out from the defib. site and have the defib. checked out. Later on I'll meet with the cardiac team and discuss everything so far. I have pages of questions. I'm sure I'll be put through the ringer with tests and questions as well.
This hospital, especially this cardiac team, excels at providing information in ways we can comprehend without putting more fear in your life. I feel pretty good about going. I haven't had many issues since I've been discharged. I've been short of breath and weak most days but I half expected to be.
I know a lot of you will be praying for me and I thank you. I have faith in a good report.
As always, I'll post what I know when I know it. It's going to be a long day, so I need to crash and get some power sleep. D's not feeling so hot tonight so she's been lying down. I really need her to go with me. (and I know she'll fight to anyway.) So pray this illness or feeling passes tonight.
Thank you all so much for everything.
~R

Pain in the neck?

Hello all,
Pretty rough start to the morning. I got some good rest but I woke up very short of breath. The nurse visiting today said my pulse ox was low. ( needed more oxygen in my blood) so I was using oxygen for most of the morning and feeling pretty weak.
But then a good friend, Brynn Adams, Myotherapist/Massage Therapist/Healer/Damn Good Egg came over around noon and did some trigger point therapy on my aching legs, back and neck. What a difference! After a month of lying only on my back all day and sleeping on my back (which I do not do), I was locked up with so many knots and muscles that would spasm randomly. She released it all. I haven't felt this good in a weeks. no pain in my back at all! So much more energy, stronger breaths, just generally, incredibly better. Well, this is what she does for a living and meant to. So today's HUGE thank you goes to Brynn.
I imagine a lot of you will be wanting her info. now and that's great. Just email me and I'll give it to you. Trust me, she's good for whatever ails ya. Dorcas has her appointment already scheduled for this week. And she'll be a different person when Brynn's done with her as well.
Ok, gonna grab some lunch. I'll post later today most likely.
Ciao,
~R

Sunday, 28

I thought I was coming down with something earlier today so I stayed in bed. Slept a good bit which I needed. I woke up this afternoon feeling better. I think it's the meds. I have to take quite a few a few times a day. and it can be tough on the gut. However today wasn't a bad day. My brother Gregg, (love you,man!) was playing rock band below me for a while today. The closest thing to a live show I've been at in a while "YOU ROCK, DUDE!" He also located Neil Peart's e mail address or something and wrote him...well, something...I'm not sure what. But how cool is that? (OK, those of you not knowing who Neil is. I won't tell you. Those who do, then you know why.) (Maria Lemmo, this means YOU!)
All in all, today was a good day. I'm feeling alot better after eating some stew. That just goes to show you how my days can start one way and end completely turned around. So, on that note I'll say good night. Thanks to all of you sending comments and emails keeping me going. It means more than you'd think.
Later on,
~R

Work on the building THANKS!!!!!

Hey all, feeling so much better today. Goodnight sleep for once. It was a very productive day for a few guys I know.
Thanks to all the fellas for working on the building. John, Gregg, Tom, Paulette and Dad. Having fun with the jack hammer and running electric. Thank you Bev for making all the food for the workers. They loved it. So many people doing so many things. Thank Terry & Dave for watching our house and staying with our kitties. We miss them. Play with the laser thing and you got a three friends for life. Thanks Bob for keeping us Plowed out. I know you're having fun. Did we really get 2 feet? You're kidding right?......RIGHT?! We'll need it plowed daily if this keeps up. (For those of you wondering just how much snow we have I asked to have a pic sent. So I'll post it when I can. ) Oh HAPPY BIRTHDAY JOHN! He's working on his birthday and a saturday for us. We feel special. I have so many people to thank I just tried to get everyone that's here and at home today. There's many more. Thanks for all the cards and letters (Linda's was the funniest so far.) and there are some good ones. If yer looking at cards, you gotta go stupid, sick and funny right here. Dorcas and I feel so fortunate to have so many of you all over the place doing everything you can. We love you. Dorcas wants to thank those who stayed closed to her when she was spending every night in Pittsburgh. (Angela and Priscilla, Mom n Paulette) What can I say girls? We are blessed with you. Ok Ok I need to just get the Thank you cards out and hit the HUGE list. It'll take a while. Just know you're all so very appreciated. Gregg, I love ya man. (He was the lucky one who got to run the jackhammer all day.) He'll be passin' out soon, methinks.
As well as I. I've been getting some sleep lately and loving it.
Thanks to all of you for keeping up with the blog. I'll keep posting if you keep reading.
Goodnight

Friday, 26

Today was a busy day for me. Trip to the Doc's. (Bursch) and a few other places. I have to say it wiped me out. Been chasing that rib pain most of the day. However I ended the evening on a great note. Paulette made me a vest to help distribute all the portable equipment I always have to have with me when I'm moving about and leaving the house. I'll describe it later but it has freed me up so much. It took away anxieties I was having about toting and protecting this equipment (which weighs about ten lbs.) It doesn't sound like much but when you have to carry it constantly and with every step it wears me out pretty fast. I'm sure you parents know how tired you can get holding your infants all day. But my equipment (two batteries and a "system controller") hasn't thrown up on me yet. My spirits are high. Just got off the phone with Eddie and had some laughs. My Uncle Bill, who had a stoke recently is showing signs of improvement. And who doesn't love all this snow.
(the sarcastic end, beautiful.) And I'm sure I'll sleep good tonight. Drive safe and tip your waitress.
~R

Sleep

Many of you know I've had some sleep problems for years. But since all this happened It's been hard to get any real sleep. I'm not used to sleeping on my back and I've had to for weeks. The good news is my chest is healing and I can almost turn on my side. (You don't know how great that feels)
That's what recovery has been like. Alot of healing and work to get back something I'd taken for granted. And there were so many things I took for granted. A harsh way to learn but I consider that a plus in the entire situation.
A great second chance was given to me and it is impossible to ignore. I draw alot of strength from that. Many of the things in my life that have changed, were supposed to. Coming out on the other side of this has shown me more about about myself than I ever knew.
Thanks again to EVERYBODY that's been helping out. So many of you. I feel I'm getting a little stronger everyday and will be able to start seeing some of you.
Many of you ask what you can do to help me out, and I appreciate that. But honestly It's Paulette, Tom (who let me recover at their place.)and especially My wife D that I want helped. They been tirelessly tending to me and I want them stress free and comfortable. Like the other day, My friend Brynn (Massage therapist/healer/good egg came down and worked on D's stress points and made a HUGE difference for her. So if you can think of anything nice to do for them I'd appreciate it. Helping them would be helping me.
It's 5:22am and I'm wide awake. (This never seems to post the right time for some reason) So I think I'll get up and try some leg training. I'll post again soon. Thanks everybody!
~R

Answered Kim's Question

In my last post a good friend, Kim, asked a question about the onset and actual heart attack. Please read the post in reply to her question. Please, if anyone has any questions about my experiences in the past 3 weeks do not hesitate to ask. One of the main reasons to continue this blog is doing just that, answering questions you may have.
Here's a you tube video that will show you exactly what was "installed" in my heart. http://www.youtube.com/watch?v=-gA7_oJruzQ It's computer graphic so no "Live Operation Images". I still haven't gotten up the chops to watch those yet. But I'm sure my curiosity will lead me there soon enough.
I'm feeling rather good tonight. a complete turn-around from this morning, lemme tell ya.
Thanks all,
Much Love,
~R

Tuesday, 23rd

Went to see my Primary care physician today, Dr. Bursch. He's been my PCP for about 15 yrs. (the man is awesome.) I was weaker than I'd ever been since I'd been home. And it had to do with fluid levels. He doubled my Lasix treatments (Water meds basically) and that did the trick. I felt so much better after I woke up a little while ago. That's how some days just are. a mix of good n bad. strength and weakness. I take so many pills a day and some of them need adjusted often to balance me out right. (which is why they draw blood every couple days.) I remain optimistic that soon I'll be stable for greater periods of time.

The goal is to get on the transplant list and get a new ticker. This can take months. It can take years. I'm fortunate I have common blood and tissue types. First things first. Recover. Which I'm doing very well at my sis Paulette's (she's been busting her ass.) It's great to be around my family at this time. VERY Powerful energy lemme tell ya. I'm hoping I can start seeing friends soon. But I have to take everything slow. I guess the hardest part to any visit is getting me to shut up. (I talked to Rat today and he agrees, thanks pal.) But it just feels so good to hear everyone. Make sure you email me any info. on how to get in touch with you so I can touch base with you.

I miss playing my drum set. And that's another goal I WILL ACHIEVE. I gotta jam with my brothers (Ed & Johnny) like now!
I have a lot to work up to. But a lot to work for.

Time for chow. Will post again later tonight or tomorrow.
~R

Taking Over

Hello all. This IS Richard. Thank you for following the blog and keeping me in your thoughts and prayers. As many of you know, I was discharged from AGH early Saturday afternoon and arrived at my sister's house shortly afterward. Coming home and seeing my family and friends was a tremendous experience and seemed to triple my strength. I wanted to let you faithful readers know that I will be posting from this point. (So, I'd expect a slight change in what you may be used to.) I plan to chronicle my recovery up to and beyond my transplant surgery and everything in between. It may get pretty crazy and as most of you know, I do crazy. I hope we can laugh together here as well as forum. I'll try to post everyday with progress, thoughts & emotions. Please feel free to comment on ANYTHING. Ask questions, whatever.
Keep an eye out for me.
Thanks,
~R

Sat 5:30 PM

Hi,
just wanted to give you a quick update... We got Richard home today around 3:35 PM.
Happy to be home and get to see some family. He says that he will start doing the blog tomorrow.. guess it will depend on his strength...
Enjoy your weekend with your family!

Saturday 1:00 PM

Hi,
We are still here.. things are moving along. The post op drain (FINALLY TAKEN OUT - this helped to reduce his pain by A LOT!! per Rich) was taken out, the IV taken out, the new ICD was tested, and we took our excursion through the hospital. We are waiting for the pic to come out and get our walking papers!

Our excursion was to the gift shop on the first floor, to the cafeteria on the second floor and then back to the fifth floor. Good thing we had a wheel chair, because this was a lot of activity compared to the last 15 days...

We should be leaving soon and will update you again tonight.

Sat 20th 6:45 AM

Good morning all,
We all sleep good knowing today would bring us home. We are up, packed and just waiting to do the things that are necessary before we can leave.

Rich is still very weak and will need a lot of rest when he gets home.. to Paulette & Tom's. Rich will be checking his emails once we get home, so please email him at rdavid330@gmail.com. Please do not forward him mail, just send him a message directly. Please add your phone number because he would like to reach out to you directly on days he feels up to talking. He can also "schedule" some time that you can stop in and visit with him.
Thanks everyone who read, commented and wished us well while we were here. I read your comments and messages to him at night, which really picked up his spirits. Please continue to pray as we continue down our new path. Will post later tonight after we get home and situated.

Friday evening

Hi All,
We just spoke to the nurse and she has our discharge paperwork for tomorrow! We have a few things to accomplish before we can leave: A check on the new ICD, an hour excursion away from our floor, take out a few things from Rich (pic line) and of course paperwork...
So it will be 15 days since we left our house and started down this path. Needless to say, we are so ready to be home with our families and eating good food!

Thanks for following our journey and Rich will begin to post his thoughts on this same blog soon.
Good night,

Friday 3:30 PM

Rich is out of surgery and back in his room! He is very medicated and should be out for a few hours. He is hungry, wants to eat now, and has to wait until 8 PM so I am hoping he will sleep through most of this time.... Still planning to go home tomorrow if the next 12 to 24 hours are good.

Friday 10 AM

Just a quick update... For no medical reasons.. Rich needs to wait until this afternoon for his surgery, will let you know when he comes out. He is feeling very confident that this is the way to go. Talk to you later

Thursday night 9 :30 PM

First, Thanks to those who attend the HeartMate II lesson!! You guys rock!!
However, Richard's home arrival date has been pushed back a day (at least). We are, by choice, having a small internal defibrillator installed in Rich's chest. This will add more protection(from a strong, damaging arrhythmia) for him while he is at home and waiting on a heart transplant. We are very confident in the decision, instrument and surgeon. As always, we will give you an update tomorrow as soon as the surgery is over. They are telling us they will be in first thing in the morning to talk to us again.
Thank you all for taking the time to read this and keeping us in your thoughts. Rich will be home and he'll see you soon.

Thursday 5:00pm

Quick update for those of you that keep a close watch on Richard and what is going on...

Richard is still in ICU but that is due to the fact there is no room for him upstairs. He is very bored and tired! He has had a full day today and we're all thankful that things went well.
They have regulated his heart via of shocking it but the plans remain for him to go home tomorrow.

We want to "thank" everyone that showed up for the training class and know that you all will do a great job keeping Richard's best interest at heart. I'm sure you will feel much more confident after just one day with Rich!

Thanks for your prayers and support.

Thursday 11:45 AM

Just left Richard, his proceed went well! His heart rate was at 170 this morning and now they have it between 60 to 65, which is GOOD. They will watch him for the next 24 hours or so.. He is just wanting to go back to a normal room with a TV vs. being in the ICU...
Back to you later...

USA TODAY

Check out the article from the USA today this week on the HealthMate II
http://www.usatoday.com/news/health/2010-02-16-heartdevices16_ST_N.htm

Thursday, Feb 18th morning

Good morning all,
this morning Richard called me about 5:30 AM to let me know that he was going in for an off scheduled activity. The electric flow in his heart is very high and through the night they tried to bring it back into a normal range with medicine. He has been moved to the ICU to get his electricity converted back to normal. He will be put out for this process and won't feel anything. He is not in pain, just uncomfortable.

We have found out from the team, that this is quite normal within a week of a person having a heart attack. We are still shooting to go home soon. Potentially Friday, but more than likely Saturday or Sunday.

He continues to keep his spirts up, and telling me to make sure the Physcial Theripists get their equipment back that they loaned him to use... He told me that he is longing to make the trip home and be able to look out the window and see the world once again. I just left the ICU and they were preparing him for this process... Keep us in your prayers once again today!

Wednesday evening 7 PM

Just a quick note... Rich had a full day of a lot of walking and visitors. He is worn out from all the walking and physical therapy, but feeling stronger each day.

Tomorrow, our Caregivers (family and friends) will be coming to the hospital for a training class on his HealthMate II. This is a requirement for us to pass before he can go home. He will also be required to take an hour excursion, normally away from the hospital. Depending on the weather, it might just be to the cafeteria.

By the way, Duke (COO) has stopped by to see us three times now... Thanks Margie for the extra support!
Good night all...

Wanted to let everyone know that we did get the USA Today article. ... Read it if you get a chance it is very educational.

Feb 17th noon

Another good day of walking and building up Richard's strength. Reports still good on Richard's progress.. In fact, the Cardiac Team and others have recognized him as one of the fasted to recover from this type of surgery. Major focus now is getting strong enough to go home. Target to go home is still Friday as long as we can get the last drainage pump out. It has slowed down today, so that is looking good too.

Dr. Bailey said yesterday, that Richard is the poster child for the HealthMate II. Everyone that comes in to work with him reports back to the team that he is learning fast, understands, and a pleasure to work with... this is no surprise to us that know him... right? Dr. Murali came in today for the first time since his surgery and was very happy with the progress. He has asked Richard to come back at the end of March to talk to a group of doctors that will be here from other hospitals to learn more about the HealthMate II. God is working... keep praying.. Also, if you have the USA Today from yesterday, Tuesday, there was an article about this hospital and the HealthMate II. We are trying to locate one of these... Until later, enjoy your day!

Feb 16th 4 PM

Rich is still looking and feeling good.

They continue to d-line Richard and he no longer receives any meds via IV. He has one (1) drainage tube to be removed and he'll be free from a lot of tie-downs! The ones left are ones that Rich is very thankful for...they are his life support. He just receives one good report after another and that is music to our ears!

He, also, wants everyone reading these blogs to know he appreciates your love, support, and prayers. Don't stop now!

His best news is that he will be going home Friday 19th and that is nothing short of a miracle.

On Friday, we will be moving into Paulette and Tom's house until the apartment is ready for us to move into. They own a building a few yards from their house in Latrobe that is being fixed up for us. Many of you have volunteered to help with the renovations. Please call Pautlette at 724-321-5584 and she can let you know what is needed and when we could use help. We can use laborors, tools, trucks for moving and food for the helpers.

Also, we are looking to borrow a stationary bike and a treadmill for a few months. If you have one or both of these and will let us borrow them, you can call Paullete with this information. For those good cooks out there... we are looking for heart healthy recipes that you have used and know they are good. We will need to be eating much differently from now on.... Thanks in advance for all of your help!

Tuesday morning

Good morning all,
There are some of you that have told us that you wanted to visit Richard when there was an opening. We do have this afternoon and tomorrow afternoon open. The visiting hours are from 1 PM to 8 PM. He is in 565, get on the E elevators in the main hospital, go to the fifth floor and turn left off of the elevator.

I am on my way in to see Rich and will give you an update on his progress later today.
Thanks for your continued prayers that have gotten us to this point.

Feb. 15th

Monday 15th, February

Update on Rich.

This has been a very good day BUT an extremely busy one. When we arrived at Rich's room early this morning we found him in a very good mood. He had a good night's sleep and even eaten some of his breakfast. That was the beginning of his busy day. The doctors, nurses and rehab personnel have kept Rich and us all busy. The doctor said his goal is to d-line Rich as quickly as possible and begin getting him ready to go home. (which involves a lot) By d-line he means to remove all of Rich's tubes etc, except his "lifeline" one at a time. They removed one or two (?) yesterday, another one today and tomorrow there should able to remove two more. The rehab department didn't give him much time for rest so he probably will sleep well tonight! They brought in the machines that he will go home with and had him begin connecting his life line that will become a BIG part of his life from now until he receives a transplant. We were sooooo pleased that we all had been working on his/our homework and he was ready. He did an excellent job! I'm sure tomorrow will be just as busy a day.

I know we had promised to list his phone number on one of these blogs but with the good news that he will be going home much sooner than anticipated and knowing that his days will be extremely busy we will not be doing that. For that we apologize as I'm sure many of you wanted to call Rich but I'm sure you feel the same way we do. We are anxious to please his entire team and if they are going to promise an earlier release then we are going to do all we can to make that happen. We are thrilled to report that nurses, his rehab leader and one of his doctors have told us that we are far ahead of the curve than any other patient in preparation for him being able to leave...they are impressed! We have one hurdle left and for that we ask for your prayers.

This Thursday there will be a class for the care givers and it will be very important. It will prove to Rich's team that not only Rich is ready to go home but those involved in his extended care are ready also.

Keep praying and we thank you for the prayers he has been receiving.

Monday 15th February

9:30am



We are waiting for the doctor to see what he has to say to us today.

We continue to study the books on Rich's care and ask every nurse that walks through the door questions to be sure we are are grasping what we're reading. Just have to be sure! They probably will be glad when we go home but they are very garcious and answer every question and try to assure us they understand why we have so many questions. The care has been and continues to be "great". They tell us over and over that they are here for the patient and family and want everyone to feel comfortable and having answers is just another way to accomplish that!

We were thrilled when we walked in today as Rich shared with us that he slept great last night and that finally his food taste like food! That means he is beginning to eat, which means that his strength will be improving, which means going homes comes a bit closer.

14th, 2010 Happy Valentine's Day!! I am happy to have my sweetheart with me on this day. I couldn't ask for more! Today, Rich had one drainage tube taken out, only two more to go. We are down to two IVs and they should be out by tomorrow sometime. Dr. Benza stopped in to see us, he is ahead of the transplant team and part of the current team of doctors caring for Rich. He wants him up and moving as much as possible. He said that Rich might be able to go home by the end of the week!!! We all will need training on his HealthMate II and be able to pass some tests before he will be released. We should know our training date tomorrow. In the meantime, we are studying the books that they have given to us.

Some of you have ask me to give you an update on how I am doing... I am doing amazingly well. God is giving me a lot of strength and I have had a great support group around me and with me everyday. My work has sent me a care package that has a little of everything to make me comfortable and keep me busy. THANKS to all at DNP for the nice gift!

A lot of you are asking what you can do to help support us. We will be moving into Tom & Paulette's building. There is some work that needs done before we can move in. If you can build walls, paint, or even make some meals for the workers that would be great!! You can contact them directly if you are available to help. For those of you who live far away, we will be holding fund raising events in the near future and will keep you informed.

Enjoy your loved ones around you on this day and don't take them for granted.

Saturday... Let's get moving

Today was a big day to get out of bed, walked around two times. Also sitting in a chair, but found it very difficult to get out of the chair. All of that and Rich was worn out and ready to sleep. Later in the day, he visited with Gena and his father. Everything he does is still an effort for him... but his attitude remains very positive. He is determined to listen and do what the doctors and nurses ask him to do.
Sunday he is planning on a day of rest..... Please let us know your plans to visit, so we can fit you in and still give him the opportunity to rest.
Thanks for your continued prayers....

Moved to My own Room!

Today around 3:30 PM, Richard was moved to his own room in the CC unit. This is a big step and his surgeon, Dr. Bailey said his progress is moving quickly. We know, that is due to all of your prayers. He does have a phone, but he has asked to hold off on the calls until he has gotten some of his strength back. He is sleeping now and all of the activities of today have worn him out. Once he is up for some calls, we will list his number here for you. Until then, you can send him cards. Visiting hours for this area are 1:00PM to 8:00PM, limited two per visit. If you are thinking about coming in to visit, please let me know so we can coordinate a time for you to see him.
Thanks for your prayers, please continue to pray to get us home soon...

What can happen in a week!

Today brings us to one week that I rushed Richard to Latrobe Hospital, then we took an ambulance ride to Westmoreland Hospital and later in the week a helicopter ride to Allegheny General. To say the least it has been a very busy, crazy, and shocking week!

I have always had faith, but this has reminded me just how much God does care about us and loves us. Only through all of your prayers, have we made it this far. Thank you

This morning, Rich is just being his funny self. They are taking most of the tubes and IVs out of him. They told him that the plan is to move him to a regular room in the Coronary Care Unit on the fifth floor later today. We even have his room number 565 (1). Many of your have been wanting to sent cards and now is the time that he will be able to read and enjoy them.
Allegheny General Hospital
320 East North Avenue
Coronary Care Unit Room 565 (1)
Richard David
Pittsburgh, PA 15212

I was just in there again and he was sitting up in a chair for the first time, what a sight to see him out of bed! He will still have limited visiting and need rest to regain his strength. He should have a phone and we will post his number when it is available later today.

night night..

Richie's 8 PM visit was extremely positive. He was joking around, getting back to the guy we know and love. He is now working on breathing treatments to make sure his lungs remain clear. We are hoping that tomorrow brings him getting out of bed for the first time in seven / eight days. His biggest complaint is that he is thirsty, but he is on limited liquid intake. His liquid inputs and outputs are being carefully monitored. Of course he had some good questions for the nurse (April) "Am I going to get mechanical heartburn?" If he is good tomorrow, he might be moved into a cubical where he will be able to get more rest. Of course this is still in the SICU unit.. Good night to all....

He's Awake!

Miraculous! As we had hoped, Rich was conscious and able to talk to us during the 2pm visit... He said to Dorcas, "This was a breeze... I'm good, let's get outta here." He is feeling a little restless and would really like to sit up and have some water but unfortunately, his nurse Scott said not for a few more hours. Rich thinks Scott "is just pissed at me."

Rich needs more rest and monitoring for the next several hours. Hopefully the uncomfortable Swan Catheter in his neck will be removed, and the doses of medicines are slowly being tapered down. He might even be able to sit up if there is no bleeding in the next few hours.

Dorcas and Richard just met the COO of the hospital, Duke Rupert. He was sent to check in on Rich by some of our friends and their family. He is a nice guy and ask Richard if there was anything that they could be doing for him that they aren't. He will be checking in with us during our stay.

Rich is looking at possibly being moved from the SICU to a room of his own by tomorrow.

Feb 11 2010

Yesterday, Richard under went open heart surgery and was given a Helathmate II system. He went in surgery around 10 AM and was completed around 2 PM. Doctor Baily said that he was a good candidate for this and he was doing well. They left his heart open to watch for any complications and monitor blood loss and oozing. Richard received only 2 units of blood afterward which was much less than normal for this type of surgery.



Thursday, February 11th 6am, Doctor Bailey felt confident in closing Richard's chest. His temperature increased slightly but was easily maintained with normal medicines. No cause for alarm. His vital signs have been monitored constantly by his attending nurses, with all levels being normal and expected. The Nurses in the SICU (Surgical Intensive Care Unit) have been exceptional and vigil in their care of Richard, and patient with the family and their on-going, continuous questions.



As of our 10am visit, Richards color looks great he even seems to want to respond when hearing the voices of his family. We tell him how proud of him we are, how well he is doing and how much we love him.



Now that the HeartMate II is in place and functioning properly, Doctors plan to remove his breathing tube and balloon pump, making it easier for him to talk when he is awake.



We look forward to our 2pm visit where we are hopeful that he will be awake and able see and speak to us



Thank you all for your continued thoughts and Prayers. We still have a long road to travel with regard to Richard's recovery and future steps to consider, so please keep them coming!!!!

Dear Friends of Rich and Dorcas...

Dear friends of Richard and Dorcas… To better update everyone on the health issues concerning Richard, we are forming a blog group. So many of you care enough to want to know, and pray, that this is a way to keep everyone informed of first-hand details in a timely manner. Please feel free to give this URL address to other family and friends of Rich and Dorcas.

For those who have not yet heard, Friday, February 5th Richard suffered severe chest pains and was taken to Westmoreland Hospital. Doctors suspected he had suffered a heart attack. A catheterization revealed his heart was badly damaged, and his arteries were clogged. Doctors gave him medicines to correct the damage to his heart, and gave him oxygen and blood thinners to increase the oxygen levels throughout his body.
Doctors estimated Richard’s heart health at 15 (60 being a healthy heart) Richard received a cardio balloon pump to assist his weakened heart. Doctors were able to clear some of the plaque in his arteries, which helped improve his circulation.

Sunday, morning, his vitals were looking good, and oxygen levels were up. Then about 1:30 he had a ventricular fibrillation and Doctors were able to bring him back with medication, he was conscious and speaking through the entire process.

Monday, Richard was Life Flighted down to Allegheny General Hospital. With another assessment of his heart rated him at a 10 (less then 25% function)

Tuesday, Doctors have decided to proceed with open heart surgery and placing a Heartmate II LVAS, which will take over most of the heart functions and help bridge the time for his transplant. This surgery has an 85% success rate.

We are feeling very positive in the road to recovery that is in front of us. Please keep Richard in your prayers.