tuesday

Feeling pretty good today. The chest hurts quite a but. (Overdoin it during the day) But other than that....
Diggin the weight loss though. I need smaller clothes, seriously. Not a bad problem to have.

But the other good news, my father started to move his left leg. (He had a stroke three days before I got my heart.) ((What timing)). So, I'll accept that as a miracle and that is that. Alot of us are praying for him. It'll be a long road. But he's a fighter and always has a positive attitude. I expect a full recovery.
It's been quite a year already and I just want everything to calm down so D and I can coast a while, relax and catch up. Much needed vacation.
TTYL,
~R

Sunday June 6

Hey there,
I got my results back from the biopsy and I'm not rejecting at all as of now. I'm at 0R. some they took me off three meds and lowered the prednisone again. If it keeps going this way I'll be off most of my meds in a few months. Though I'll have to take anti-rejection meds for the rest of my life. Which doesn't bother me at all. Getting back to a normal life. I'll get the o.k. to drive andm play drums in 2 weeks. Looking forward to that.
Alot of you have been wanting to see the pics I have on the procedure. They're pretty graphic so I'm looking for a way to open the on the page without them just showing up on the page. We'll see. I'm working on it.
Well, that the good news for the day. Talk to you soon.
~R

thursdsay

Thursdays are long days at the hospital (AGH) all day testing with a biopsy chaser) 6am - 3-4pm.
By the time we get home D and I are so tired it;s straight to bed. I'll get a call tomorrow about the biopsy and rejection levels. The first 3 months are critical. I'm one month to the day after the transplant. So far so good. I'll let you all know the results as I get them. But so far today I was taken off three meds and it looks like they 'll lower the prednisone another 5 mgs. (That is good news) The pressures in each chamber and my lungs is exactly where the docs want them to be. If all goes well. I'll be able to drive in 2 weeks. And that little bit of independence is gold. D can get a break finally. And I can start making some house call to family and friends. I have alot of you to catch up with.
Until next time, thanks for reading,
~R

wed. June 2

hey all,
Going for another biopsy omorrow. and will let you know what we find out. I get a biopsy every week on the right side of my heart to test for rejection and what not. So far, I'm looking the way I should with very mild rejection. Some rejection is expected. Rejection ranges from 0-7r, I' (I'm at 1r mild inflammation of some cells) Again, expected. I'll learn more Friday on my immunity levels. As it stands right now, it's still pretty weak.
Please continue to pray for my father. Some of you know that he had a stroke 3 days before I got the call that a heart was ready to be transplanted to me. I haven't been able to see him in person at the rehab facility (Due to the germs) since I got out from the hospital nearly a month ago. He's making some progress though.
So as you can imagine, I'm getting pretty fed up with hospitals and clinics and such. But whatcha gonna do?
I'll keep you posted.
I told you at the beginning of this blog that I would chronicle the journey from start to finish. (The end being life after the transplant. Well we're here. I didn't think it would be after only 4 months but it is. I plan on telling you all about the night I got the call for the heart and what followed. So keep checking in.
thanks for following the blog. Talk to you soon.
~R
~R